Meniere’s COVID First Timers

There has been research that points to SARS-Cov2 being found in the inner ear and Meniere’s symptoms being caused by the infection. I ran across a few articles on the NIH website discussing this potential problem:

A higher incidence of MD first diagnosis was calculated during COVID-19 pandemic; furthermore, MD patients presented with more vertigo attacks and higher DHI values. These could be associated with the higher state anxiety during COVID-19 pandemic.

nih.gov

The researchers identified ten patients with COVID-19 who developed hearing loss after infection. The hearing loss ranged from mild to profound. Nine of the patients also experienced tinnitus, a ringing or buzzing noise in one or both ears. Six patients experienced vertigo, a sudden spinning sensation. The timing of symptom onset suggested a correlation between COVID-19 infection and hearing loss.

nih.gov

reddit

It’s been well established that COVID has effects on organs throughout the body. It would be surprising if it didn’t also affect eyes and ears:

The virus may also able to get into the body through the eyes, studies suggest—either from eye rubbing and the direct transfer of tears or from respiratory droplets that happen to land on the eye.

Over the pandemic’s first year and a half, accumulated data have established that about 11 percent of people with COVID develop some kind of eye issue, according to a review of multiple studies.

scientificamerican.com

reddit

Oh, great. This probably explains the influx of new people to the r/Meniere’s sub looking for answers. I was wondering where all the new traffic was coming from. Welcome, friends. Come on in and have a seat. We’ll prepare a cup of hot green tea and then we can talk a bit. You don’t like tea? I’m sorry. You probably should try learning to do without caffeine though. Why? Oh, we’ll get to that don’t you worry.

Continue reading “Meniere’s COVID First Timers”

A Cure For What Ails Me

Meniere’s has no known cause. If your symptoms can be traced to a cause then you technically don’t have Meniere’s anymore. You’ve got whatever that other thing is called instead. It is the nature of the disease that finding a cause for some group of sufferers removes them from the pool who don’t have an explanation for their symptoms. There is no official procedure for this getting done, it is simply the way these things work out on the ground, where people like you and me and everyone reading this simply have to cope with our daily challenges. It’s all most of us can do.

The bandaid problem is why people reject modern medicine and decry big pharma as creating classes of people who are shackled to thier treatments, instead of finding a cure. They don’t understand that manufacturers largely serve the demands of consumers. Big pharma would love to drive demand the way that conspiracy fantasist have nightmares about, but individuals are fickle and hard to predict. It is very tempting to point to people just wanting an answer and to be made comfortable afterwards as not understanding what could actually be possible with real answers and real cures. But they hurt and they are confused, and they just want to stop hurting. To have that answer.

Continue reading “A Cure For What Ails Me”

Medicine & Chronic Illness

Doctors are stuffy. Their education and experience lead them to be more confident in their methods and results than they should be, and patients not getting better is a challenge to everything that they believe in. It isn’t their fault, but like everyone else that fails at their goals, they think it is.

There is always room for improvement and this goes double for medicine’s approach to the chronically ill. They need to admit up front that they can’t cure us, yes. However, most people’s ideas about alternative medicine and treatment are ritualistic at best and actively harmful at worst.

My mother insisted I needed to ingest diatomaceous earth for my stomach problems. Her alternative medicine research had lead her to this conclusion. Her research method? Put the treatment in the patient’s hand and measure the strength in that arm. This is a common practice in alternative medicine and that’s just one example. I have dozens of examples of alternative medicine craziness that I’ve just never published stories about.

Nothing that alternative medicine has ever suggested to me, none of the home remedies I’ve ever tried have done more for me than my own dogged trial and error run through every medicine available over the counter. My willingness to try new prescriptions.

I’ll take stuffy doctors over pseudo-science any day. I just change doctors if I feel the one I’m seeing isn’t taking me seriously. For me, dentistry is just this side of quackery anyway. Temporomandibular joint disorder is a thing though. So I will give that diagnosis a wide latitude for the sake of those who find relief in treatment for it.

reddit.com/r/Menieres

Sudafed Non-drying Sinus

I’m still seeing a lot of questions about ear fullness on Meniere’s Reddit.

I have a specific treatment regimen for ear fullness because I was certain that my symptoms were caused by allergies back in the 1980’s when this all started for me. I tried and then discarded every single allergy treatment commonly on the market between the years of 1984 and 2003, and the only real symptom that I had to judge effectiveness against in those years was ear fullness and sinus pressure. At some point after we moved to Austin the Wife and I settled on the medication that we decided worked best, and that was Sudafed Non-drying Sinus.

Continue reading “Sudafed Non-drying Sinus”

Booster Vertigo

I have answered several questions over the last few months since the government (outside of Texas) started mandating COVID vaccination and recommending that everyone get a booster shot six months after initial vaccination. Questions from fellow Meniere’s sufferers who are concerned about having a rotational vertigo attack following vaccination. I have a quick answer for all of them. All of you.

It is entirely possible that the stress of any vaccination could trigger a vertigo spell. You should be prepared for this if vertigo is a thing that you have ever experienced. Stress can cause vertigo. Be prepared.

Most vaccinations cause mild vertigo for me. I accept this fact and move on. I get the vaccinations anyway, even with the added vertigo and associated other ill-feelings. I do this because the stress of illness also gives me vertigo.

I get vertigo when I go for a long walk and provoke an allergy attack, of course getting sick gives me vertigo. The vertigo I get from a cold or the flu? That vertigo is worse than what the vaccination makes me suffer through. I’d rather not have that so vaccination is a no-brainer for me. Just looking at the big picture.

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What Would Bunk Do?

He was known as Bunk to friends and family and he carried that nickname all his life. He earned that name fair and square at a very early age by retorting “that’s a load of bunk ” after being told something that he thought was bullshit. Bullshit was the kind of word he would reserve for private reflections on the bunk he encountered, but he knew bullshit when he smelled it all the same. You don’t have to be offensive in your rejection of other’s ideas. It was enough to simply dispute them, and he did that with emphasis.

He was a science man through and through. If you could prove a thing through trial and error, then that thing was a true thing and he stuck with it. His family grew to accept his judgements after awhile. What he said proved to be the thing that needed doing so often that most of them rarely bothered to disagree with him publicly. Sometimes when they encountered problems in their own lives and he wasn’t there to ask, they would even quietly ask themselves “What Would Bunk Do?”

He grew set in his ways, like most of us do as we get older, certain of many things that could not be proven. More and more of them as time went on. Not all experts are wise, and not all wise men are experts. The doctors that advised his last cancer treatment were of the first variety, and neither he nor they thought to look for men of the second variety to double-check their diagnosis. Blind faith in the practitioners of science can kill you just as surely as blind faith in anything else will.

The moral of this story is to always ask for a second opinion if not a third opinion and a forth one if necessary. Do not ask to find an opinion you agree with. Ask to find one that you disagree with, and then figure out why the disagreement exists. New technology can be a weapon when wielded by the wrong hands. Make sure you understand how it works, or at least that the experts you rely on understand it.

Bunk died in 1997 and so was spared from the insanity that has plagued this country he loved so much since that time. Still, I have little doubt that he would have declared today’s COVID vaccine hesitation a load of bunk given the situation we are in today. The science denial has gotten too obvious on its face. Its adherents too strident in their denial. The costs to the country and to the world are too high to not concede that vaccination is the way out of this mess.

I got my COVID booster shot today. I got my first dose as soon as the vaccine was available:

I had my doubts about mRNA vaccines at first. I had even more doubts that a vaccine created by Donald Trump’s (lack of an) administration could possibly create anything that worked.

Planet Money – Moonshot in the arm – November 5, 2021

It wasn’t until Dr. Fauci accepted the vaccine that I knew it was probably safe and that I could accept it for myself. I got second and third and forth opinions, too. Then I got my vaccination and tried to pretend that the world would go back to normal.

Unfortunately the Trumpists whose God-Emperor had decreed that the vaccines be made won’t allow themselves to be vaccinated because he also said the pandemic was a hoax and that the virus was no different than influenza or a cold. This is demonstrably untrue.

That all kinds of other treatments work against this hoax virus better than vaccines do. Why you need a treatment for a hoax is beyond me, but that hasn’t stopped dozens if not hundreds of people from poisoning themselves with the fake treatments that these con artists that work for and off of Trump are selling.

Six months have gone by since I got my first shot, which makes me eligible to get my booster shot.

Short Wave – How Long Does COVID Immunity Last Anyway? – September 21, 2021

This is the way immunology works. Some people get break-through infections after being vaccinated. This is what the percentage means when they say that a vaccine is XX% effective. the Pfizer and Moderna vaccines were 90% effective against the SARS2 virus that was circulating a year ago. They are both going to be less effective against the mutations that are currently circulating.

Why? Because the unvaccinated give the virus a chance to bypass the protection a vaccine offers by carrying their mutations near the vaccinated and thereby giving the virus a chance to test itself against the vaccine. Each new infection of a vaccinated person brings us one step closer to a new virus that can bypass the therapies completely, and then we will be back to square one again. Locked in our houses and hoping that something will happen that will release us from this hell that science denial has brought on us.

I’m beginning to doubt that we deserve to be saved from our own stupidity. But I got my booster anyway because there is still a chance that we might beat this thing. If we grow up. If we accept that science is real. If we ensure that the virus can’t spread by making everyone on the planet get their vaccinations.

Don’t tell me you are afraid of needles because you can’t be more afraid of them than I am (see the vaccination article) Don’t tell me that you don’t believe in vaccines or that this is all political bullshit. Science is real and people are really dying. Bunk would say “get your shots” in spite of the fact that some other sciences in today’s world would give him reason to question their veracity. Vaccinations are proven technology and they work if you get them. So get them so we can put this pandemic behind us. Please?

And someone wrote new words to an old hymn, and crowds sang it for the weeks it took to end the rotten regime. “Bring out your dead, there is no need for shame. Show every face and let us hear each name. Better to know, how many we have lost…than lie and say that no such deaths have cost…”

elizabethmoon.com
Addendum

The pandemic has cost more than 793,000 American lives to date and we can’t afford to allow the unvaccinated to continue to help this illness spread and mutate. The vaccine has been cleared for almost all ages, all health conditions and is by far safer than risking the effects of the disease.  The Winter holidays are happening as I write this. Prove that you love your family by ensuring their best possible chances of health and prosperity in the new year by being vaccinated and making sure your family is vaccinated.

Tell that uncle or aunt, grandmother, grandfather or even young nieces nephews and cousins. Tell them to get vaccinated or they are not welcome at family gatherings. I’ve listened to dozens of podcasts and read dozens of news stories about how to thread the conflicts of this time we find ourselves in. I don’t understand why opening the conversation with the truth is a bad thing. “Get vaccinated or don’t come to my home. Get vaccinated or I won’t go to your home.” This strikes me as a completely reasonable position to take, especially if you know that there are going to be people who could die from airborne diseases at the family gathering. State the rule clearly and right up front. Claiming any excuse to not be vaccinated is just a load of bunk.

Beware the Woo: Pox Party

Was mich nicht umbringt macht mich stärker

Friedrich Nietzsche

Back at the dawn of time, before there was modern medicine, there was the flawed notion that the thing that didn’t kill you made you stronger. A broken bone healed back stronger than the original bone. Surviving a childhood disease meant that you had a better chance of surviving being exposed to the disease as an adult.

None of this is actually true. A broken bone is more brittle at the point of breakage and will tend to break again. Childhood diseases can cause adult diseases that are even worse. Adversity can hone tenacity, but adversity also hardens hearts and warps desires. One does not walk causally into fire hoping to get scars. That would be stupid.

My mother was a Christian Scientist. She didn’t believe in science or medicine in a general sense. Medicine had killed her mother as far as she was concerned, and she never forgave it for doing that. This was also not true, but there was little point in arguing with her about the facts of health, disease, and the slow acquisition of knowledge. My mother went to her death denying she had cancer and refusing treatments for the cancer that she had been diagnosed with. This is what happens when you deny science. When you deny reality.

One of my earliest childhood memories is of staying a few days at a friend’s house for a pox party when he was infected with some disease or other that caused little red pustules to appear on your skin. This had been a common practice in generations previous to mine. In the time before vaccines were available for the many kinds of infections that can kill us. Some diseases, it was decided, were better to catch as a child because the disease caught as an adult could kill you much easier.

The people back in the early 1900’s didn’t know about Shingles or the fact that it was caused by the same virus that caused Chicken Pox because they had no tools that could discover these tiny bits of life code that float freely around us and in us. Not until the creation of more powerful microscopes could they see that there were infectious agents even smaller than bacteria, and it was decades after that before they could sequence the DNA and determine which viruses did what things to people.

They just knew that sickness was all around them, and that children were stronger than adults were. Sometimes these children died from the infections they were exposed to, but those were the weak children anyway. At least, that is what the parents of the surviving children told themselves. By 1968(ish) when I was taken to the pox party that I remember, there were vaccines for most of these infectious diseases, and the children around me had been vaccinated with the early versions of the MMR (Measles, Mumps and Rubella) That vaccination is on my shot record as being given to me and it would have been required of all the other children, too. There was no vaccine for Chicken Pox until long after I was too old to get it, though.

Ever anxious to engage in whatever alternative medicine that was being practiced around her, my mother dutifully surrendered me to the quarantined house and I was exposed to whatever it was that my friend was sick with. He had a pretty bad infection, and several of the children who stayed with him also had pretty bad infections. None of them seemed to lead to any complications, but it is hard to judge the harm of an action until some time afterwards. The virus that causes Chicken Pox is one of the herpes family of virus, it stays with you all your life once you have caught it and causes Shingles in old age.

I had been exposed to some form of herpes virus when I was born. Being exposed to its cousin may or may not have done anything to my immune system, it is really hard to say. What I do know is that I never had a rash like the other children had and I always wondered why that was. Knowing what I know now, I wonder if the previous encounters with herpes had primed my immune system to ward off its cousin, or if the same immunity blindness that allowed the one to persist would also allow the other to persist?

In any case, I wasn’t interested in experiencing the slow torture that Shingles wreaks on its sufferers so I opted for the Shingrix vaccine a month or so ago. I just wanted to see what the vaccination did to my system and whether it altered the symptoms of Meniere’s or not.

Contrasting that vaccination with the COVID vaccination and my previous experiences with other vaccines, I have to say that the pain levels came close to echoing the Pneumococcal vaccine without the golf ball sized lymph nodes that made the experience so weird and hard to endure. I can’t tell yet if the vaccine will do anything positive or negative with Meniere’s symptoms but at least I probably won’t be getting Shingles anytime in the future, knock on wood. (promptly bashes self in skull)

For all you young mothers out there I just want to say, don’t take your children to pox parties. Just don’t do that. You never know what the other children are sick with; and if you think you do know and trust the doctor’s diagnosis of the disease (this is the only way to be sure) then why don’t you trust his recommendations for treatment too? Get your children vaccinated and stop this insanity please.

Ear Fullness

Ear fullness is a common complaint among Meniere’s sufferers. It is one of the key indicators of Meniere’s along with a specific kind of hearing loss and vertigo attacks. What it feels like is hard to describe.

If you have ever flown in a plane or gone up in a tall building, climbed a mountain or gone down to the seashore from a high elevation, you have likely had a feeling of pressure inside your head. A pressure that is directly behind the ear canal. Frequent travelers know the feeling and what to do about it. Pulling on an earlobe, working the temporomandibular joint (TMJ) by shifting the jaw back and forth until the ear pops, chewing gum, etc. There are many ways to get the canals behind your ear, the eustachian tubes, to clear so that the pressure in the inner ear becomes equal to the pressure on the outside of your ear and the discomfort goes away.

Ear fullness is like that, but not like that. Imagine that kind of discomfort elevated to a level of pain that is very hard to ignore, and then imagine that you can’t get the pain that feels like it is right behind your eardrum to go away no matter how hard you chew gum, work your jaw, etc. This pain goes on for days, sometimes for weeks.

You can’t get the pain to go away, the pressure to equalize, because the pain doesn’t come from a pressure imbalance behind the eardrum. It comes from the fluid-filled chambers of the inner ear itself, the cochlea, and the fluid imbalance that produces all the other symptoms of Meniere’s disease.

The first time the ear fullness presented itself, I sat in the shower for an hour or more trying to make what I thought was a plugged eustachian tube clear itself. Instead I induced a multi-day vertigo spell by rupturing one of the vessels in the cochlea of my left ear. As you can probably imagine, I don’t recommend that form of treatment.

The next time ear fullness presented itself a few years later, I had to resist the temptation to gouge the ear out with a sharp implement. I understandably didn’t want to look like Vincent Van Gogh, who might very well have suffered from a similar affliction. I had access to a sauna at the time and I spent far too many hours sitting in it just hoping that the pain would ease off. Ease off just a little.

The pressure never did ease off. The sauna did do wonders for clearing my sinuses, though.

There is no known way to reduce this pressure in the ear. It is possible that early treatment with intratympanic injections of steroids can reduce the pressure and prevent hearing loss in a newly affected ear, but it is not a universally successful treatment, and it carries potential hazards that make it an undesirable treatment for routine incidents of pain. Hazards like permanent deafness and severe instances of vertigo.

What long term treatment of the symptom looks like remains an unanswered question for me. I haven’t found anything that will work long term for ear pressure aside from surgery. Endolymphatic shunt surgery should work to ease the pressure and not destroy the hearing mechanism but I need to look into that more than I have before I decide whether it is worth pursuing. In the meantime I try to limit my self-medicating doses to really bad days and to not let the symptoms get so bad that they reduce my quality of life. It’s a balancing act.

I’ve been having ear pressure problems myself lately. I took a dose of guaifenesin/pseudoephedrine yesterday. The pressure is down to manageable levels today but I took another dose anyway. If tomorrow is the same I’ll stop for a few days and see what happens next. This is what self-managed chronic illness is like.

I did a little shuffling of the last few paragraphs of this article and the Sudafed article. I’m still pissed about them coming after my allergy medications.

Pain God

Someone that I was chatting with used the phrase pain god to describe the supreme deity that dealt out his pain to him. I was not sure whether to laugh or cry at the phrase pain god. That god? That God you can prove exists, unlike all the other gods people talk about and believe in.

There was this time I was arrested:

I was out late, it was a busy night, the inspection sticker was a year out of date and the cop thought I was giving him sass when he flagged me down. It was two Austin bicycle cops in their ridiculous spandex outfits talking to two or three other cops that they’d just quelled a riot with, just standing on the side of the road. It’s dark, it’s just after midnight on a Friday in downtown Austin.

The Austin Film Festival is going on all over the city. These police were hyped up on adrenaline because of the riot they just broke up and the massive traffic snarls from the city-wide event. One cop spots the out of date sticker as he is scanning vehicles, joking about breaking heads with his buddies. He pulls out his flashlight, walks over to were I’m sitting in traffic and proceeds to harass me about the sticker.

It’s a rural Texas tradition to ignore your state inspection sticker. Who cares? Only the state cares, and rural Texas sneers at Austin and state government in general. Texas government has to enforce the safety laws they enact, and they did this by creating an inspection sticker that you had to jump through separate hoops to get in addition to the hoops you jump through to get your state tags.

When you are driving around on your own ranch or in the small towns that dot the wide expanse of Texas, you never see state actors that can give you crap about the sticker on your windshield. You just see local cops that you probably know by name, and they give you a warning and you go get your stupid sticker that doesn’t take into account the quality of the roads (or lack of roads) that you drive on in your daily life.

Then you move to the big city and suddenly being a scofflaw like everyone else out in the countryside is a problem that could cost you your life. The harassing police officer and three of his buddies pulled me out of the car and proceeded to sit on my back while they cuffed my hands. Then they arrested me and hauled me off to the drunk tank to spend some quality time negotiating with my Pain God.

Piriformis Syndrome causes me to be in constant pain while sitting; and being yanked out of my car and sat on aggravated that little problem. Have you ever seen a drunk tank at a city or county lockup? The one in Austin has concrete floors and baby-blue colored foam benches facing a TV covered in mesh that obscures the screen. The volume is so low on the TV that it is an annoying almost-audible whisper, not unlike the whispering among your fellow prisoners in the drunk tank.

You have to sit there until they process you and you can be released. Sometimes the sitting lasts for days. Sitting, not standing, not moving around at all. Without moving except to go in to the provided toilet room, also painted baby blue like the other walls in the tank. A baby blue that was probably calming some twenty or so years ago when the walls were painted, long before the accumulated puke and other bodily fluids mottled the color into something approaching a childhood nightmare. The toilet was a room that you’d rather not go into in the first place.

So I sat there. I sat unmoving in that one place for about 14 hours, in excruciating pain the entire time I was there. No one in authority was even the slightest bit interested in my pain or helping me with it. In extremis, I decided to take a crash course on meditating. I would meditate on the qualia of my pain all through those long hours of torture.

Staring at the floor through my tented fingers, elbows braced on knees, I contemplated the pain. I didn’t drink anything, didn’t use the restroom. I couldn’t have used the restroom even if I had needed to go desperately. It would have taken a catheter to get any body fluids out of me, I was that paranoid of being ambushed. Of being watched. I just sat and focused on the pain. I traced it up my leg to my lower back and then I became one with the agony. I inflicted my pain and endured my pain and I was my pain.

When The Wife figured out I had been arrested… As I mention in the linked article, I was where I was with a car in the state that one was in because I needed to pick her up and would never have been downtown in the first place without her need to be rescued. She was never rescued because the police decided she didn’t need rescuing. It was more important to punish the scofflaw for his out of date inspection sticker.

That one phone call thing? It’s complete bullshit in most of Texas. You can call if you’re calling a landline. If you’re calling a cellphone you have to give the private contractor that provides phone service to the jail a credit card number to charge for the call, and you better have that number memorized because you don’t have your wallet in jail to get access to the card itself. If you’ve done that homework ahead of time, you can call. If you haven’t done that homework you don’t get to make your one phone call.

So when The Wife finally got home and found I wasn’t there, when she figured out that my cellphone still working meant I probably wasn’t dead in a ditch somewhere. When she remembered that there had been a riot downtown that night and wondered if I had been caught up in that, she came down to the jail and rescued me before I died of renal failure. That is, she came to rescue me after she had gotten a ride back downtown to get her car the next day, there being no way to get anywhere or do anything until morning the next day.

I think I was probably more glad to see her that morning than I had ever been before or since. So yeah. I’ve met the Pain God. I was him for a day. I would prefer not to be him again.

if you are not worthy of trust as police, as leaders, as the press, then you must be held to account by those whose confidence you have betrayed.

Stonekettle

Warning Signs of Vertigo?

Doc diagnosed me with cervical vertigo

I had to look up Cervical Vertigo. I didn’t find an article I liked until I went looking on the VeDA website. I like the tone of that article. In all my time of suffering, even with my long history of vehicular accidents, no one even mentioned that neck posture could be a cause of my symptoms.

I was surprised by this finding. More surprised than you might be reading this here. I tend to think I have everything that I read about. The Wife says this makes me a hypochondriac, I think this means that I’m an empathetic person. I’m going to stick with my assessment of the situation.

The questioner went on to ask about warning signs of oncoming vertigo. That is an interesting question, in and of itself. There aren’t always warning signs. Sometimes you turn your head the wrong way to fast. Sometimes you look out the side window of the car and the sympathetic parts of your brain wiring turn that motion into rotational vertigo. Sometimes watching a movie can set it off:

Sometimes there are warning signs. Visual migraines, or a change in perception of the light around me is one I’ve started noticing lately. A change in tinnitus pitch or intensity almost always signals something more severe is in the wings. I almost always take something when I notice this. Being proactive in treatment is how you avoid a full-blown attack. Historically I would notice a taste in the mouth. A metallic or saccharine flavor. If I noticed that I would also take something, generally something more dramatic than the Guaifenesin that I would take for changes in my tinnitus. Something like Xanax, which I try not to take too often. It is too habit forming to indulge in needlessly.

In the end, paying attention to what your body is telling you is the only way to be on top of your symptoms and preventing the worst of them. I wish all of you luck in your own treatment regimens.

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