A fresh appeal appeared on the Meniere’s subreddit today. EECOG came back inconclusive. Am I missing something? A long and winding appeal for feedback. Something I see on the sub pretty much every day. Generally I’m not in the mood to spend time writing to newbs who could just as well have read the wiki on the subject that is pinned to the top of the sub. But I was feeling generous this afternoon. The Wife is bedridden and I feel like I should do more but can’t, so I spent a few minutes writing something that I felt was generic enough to be broadly appealing but specific enough to point them in the right direction.
No one knows what you are going through aside from you and no one can tell you how or even if what you are going through is going to change or progress. There is very little understanding of what it is that makes the symptoms that we suffer from appear, or what even causes them. As I point out in the first paragraphs here:
There are many different possible causes of the symptoms. You might try looking into TMJ disease. It may be something that a vestibular physical therapist can help you with. I’m with you on not spending time chasing the chimera of natural/holistic/placebo cures. If there is a cause then there is a real medical and/or therapeutic solution to the problem. It’s just a matter of relentlessly tracking down the cause of the problem and then addressing it properly.
I’ve been after that cause myself for most of my life. The problem never even had a name for me until 2003 and I still don’t know what the cause of my symptoms is. But I know pretty well what makes the symptoms worse now. I know when I need to medicate and when I should let someone else do the driving. That’s a step up from my low point. Here’s my story:
I would have been better served to just go walk the dog rather than to write anything at all. If I had read the username attached to that falsely ignorant appeal I would have known that it was someone I’ve run across before. Someone who really didn’t want informed answers just a pawn they could toy with and that would fawn over them and hold their hands for a nice feel-good session.
This was the second time they informed me that I was doing a disservice to the group by trying to help people with real answers to their real problems and that I needed to butt out of the convenient attention trap that they had laid. They beat me to the punch and blocked me right after the snarky reply. Time to go walk the dog. He at least appreciates the little attention I give him.